Welcome to the NBIA Alliance Website!
The NBIA Alliance is now 10 members strong!
The Alliance is an international umbrella organization for NBIA lay advocacy groups. It started in January, 2012, in conjunction with the kick-off meeting of the European Union funded project TIRCON (Treat Iron-Related Childhood-Onset Neurodegeneration).
As of June, 2019, we represent 10 countries with member organizations in Canada, France, Germany, Hungary, Italy, Netherlands, Poland, Spain, Switzerland and the United States.
International Patient Registry
The International NBIA Patient Registry and Biobank is a valuable resource created by the NBIA research community, and data and bio samples are available for research projects.