Please join our International Clinician Database of those seeing NBIA individuals for any of the disorders under the NBIA umbrella. We will keep you updated on the latest research news, send information on treatments and therapies available for NBIA individuals and if you wish, add you to a clinician list to be in contact with other clinicians in the database and/or one available to NBIA families looking for a doctor.
You may also have an opportunity to participate in our International NBIA Patient Registry with natural history study information that will help us prepare for clinical trials.