Welcome to the NBIA Alliance Website!
The NBIA Alliance is now 9 members strong!
The Alliance is an international umbrella organization for NBIA lay advocacy groups. It started in January, 2012, in conjunction with the kick-off meeting of the European Union funded project TIRCON (Treat Iron-Related Childhood-Onset Neurodegeneration).
As of January, 2017, we are 9 members strong from member organizations in Canada, France, Germany, Hungary, Italy, Netherlands, Spain, Switzerland and the United States.
International Patient Registry
The International NBIA Patient Registry and Biobank is a valuable resource created by the NBIA research community, and data and bio samples are available for research projects.