Welcome to the NBIA Alliance Website!
The NBIA Alliance is now 8 members strong!
The Alliance is an international umbrella organization for NBIA lay advocacy groups. It started in January, 2012, in conjunction with the kick-off meeting of the European Union funded project TIRCON (Treat Iron-Related Childhood-Onset Neurodegeneration).
As of January, 2017, we are 8 members strong from member organizations in Canada, France, Germany, Italy, Netherlands, Spain, Switzerland and the United States.
International Patient Registry
The NBIA Alliance is compiling patient data for an International Registry for use by researchers and clinicians.